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'Digital Diabetes'

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'Digital Diabetes'

Diabetes Digital Healthcare Systems (Health Informatics)


Clinical Management Systems including unified electronic patient records and clinical portals are becoming increasingly mainstream in modern healthcare, although in most centres they still compliment rather that replace traditional paper based records. Electronic diabetes registries in the context of good managed clinical networks have the potential to dramatically improve care but are rarely used to capacity. Clinical Management Systems are particularly useful for chronic disease management where multiple care providers are involved. A good exemplar is SCI-Diabetes, a shared electronic record for diabetes care developed by NHS Scotland and the University of Dundee (see Figure 1). SCI-Diabetes (previously SCI-DC) facilitates the collection of data from multiple sources within primary, secondary and tertiary care into one fully consolidated, patient-focused view. The system covers the entire national population of diabetes patients, meaning that data can be viewed by all authorised users at the point of care, therefore avoiding any duplication of effort.


(Enlarge Image)


Figure 1.

SCI-DC (National Diabetes Registry for NHS Scotland); a screen shot from an electronic clinical care record with fictitious patient data.

Secondary Data Use


Electronic systems may also capture vast volumes of data, suitable for record linkage and exploitation to improve service, enhance the clinical evidence base and to provide benchmarks. Clinical research networks throughout the world now support the use of clinical data in epidemiological research and clinical trials. Secure linkage and anonymisation of data from relevant datasets is required prior to analysis in order to maintain information governance standards. This process does not detract from the quality of the data being analysed, but ensures that the identities of those whose records contribute are protected.

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